TYMES TRUST ALERT
20th April 2009

Jane Colby FRSA
Executive Director
The Young ME Sufferers Trust
www.tymestrust.org

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THE POLITICS SHOW
BBC1 Sunday 26 April 3pm

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As the ME world gears up for ME Awareness Month, the BBC prepares to
broadcast a feature on ME with which the Trust has assisted.

When The Politics Show took up the story of student Samantha Brown, who
suffers from ME, the producer telephoned me for information and advice
over the condition and how it affects students.

After the preparatory work, I finally met up with Samantha and the BBC
Team in London at the House of Commons. It had been arranged for the
cameras to be admitted to a meeting of the All Party Parliamentary Group
on ME, chaired by Des Turner MP. This made it a very special day for Sam,
who had not been able to attend any of the Group's previous meetings.

Sam and I were also filmed in discussion with reporter Max Cotton about
the problems faced by young people with ME. This took place on the
Victoria embankment in glorious sunshine, with the backdrop of the House
of Lords, where the Trust's Founder Patron, Lord Clement-Jones, has
hosted our events over the years.

Altogether it was a rewarding, though totally exhausting day. We
naturally hope it results in an excellent programme to raise awareness of
ME in the young.

Don't forget to set your recorders if you are going to be out on the day!
The programme is scheduled to air straight after the Grand Prix.

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Jane Colby is Executive Director of The Young ME Sufferers Trust.
She was a Headteacher for nine years, a member of the government
Chief Medical Officer's Working Group on CFS/ME and co-authored
ME/CFS In UK Schools, the largest epidemiological study of ME to
date. She is a member of the National Association of Educational
Inspectors, Advisers and Consultants (now ASPECT), a life member
of the National Association of Head Teachers and a Fellow of the
Royal Society of Arts.

Copyright (c) 2009 The Young ME Sufferers Trust