TYMES TRUST ALERT 24th December 2008 Jane Colby Executive Director The Young ME Sufferers Trust www.tymestrust.org ====== To subscribe to this mailing list, visit www.tymestrust.org. To respond to an Alert use our website Contact form. ====== READ 'VISION' IN FULL COLOUR AT WWW.tymestrust.org/tymesmagazine.htm BACK COVER: TRUST IN VIRUS PROJECT WITH DR CHIA ====== Last week many of you in our Alerts club will have received your printed copy of Vision. Mark has also uploaded Vision to our website for you, so you can view the photographs and artwork in full colour. Seb's very proud of his Grand Art Exhibition on pages 20-21! We send you all our good wishes for the season. OTHER ITEMS IN THIS ISSUE Vision : Project Update Join our Alerts Club : Free monthly news from the Trust for anyone, whether members of the Trust or not. Let your friends know about this free service. Young Hearts Day 2008 : Students present Young Hearts poems on YouTube Enterovirus Project : Trust works with virologist John Chia (see below) Your Benefits : What are you entitled to? It's the Law, Stupid! When children's rights are ignored Nasim Marie Jafry : A two page interview with the author of 'The State of Me' Seb's Grand Art Exhibition : First class festivities Mr Harley's Pup-Keys : More useful than the average bear? Excerpt from Vision: TRUST IN VIRUS PROJECT WITH DR CHIA The Trust is working to ensure that the enteroviral cause of classic ME, as revealed by eminent researchers in the mid twentieth century, but subsequently ignored, is properly recognised so that aniviral drugs can be produced to fight the infection. Earlier this year we had a two hour meeting with virologist Dr John Chia of California. In consequence, the Trust has set up a scheme whereby samples from our members may be analysed for enteroviruses by Dr Chia in his laboratory in California. We have sufficient funds to meet the costs involved in the analysis in some cases. At our request, a protocol for taking the samples has been drawn up by Dr Chia and provided to us. Already, the results of the first cases have proved positive. For further information, please contact the Trust on 0845 003 9002. You can also read an interview with Dr chia in 'The Human Factor' (a preview of The Colby Report) at www.tymestrust.org ====== DO YOU KNOW ANYONE WHO WOULD LIKE TO RECEIVE OUR ALERTS? ====== You are welcome to redistribute or reprint this email without seeking our permission provided: 1) you do not abbreviate, add to, or change the text in any way; 2) the authorship information is retained; and 3) www.tymestrust.org is credited as the source. Jane Colby is Executive Director of The Young ME Sufferers Trust. She was a Headteacher for nine years, a member of the government Chief Medical Officer's Working Group on CFS/ME and co-authored ME/CFS In UK Schools, the largest epidemiological study of ME to date. She is a member of the National Association of Educational Inspectors, Advisers and Consultants (now ASPECT), a life member of the National Association of Head Teachers and a Fellow of the Royal Society of Arts. Copyright (c) 2008 The Young ME Sufferers Trust