Tymes Trust Alert 2013-06 Message from Jane 14 July 2013 ====== Follow Jane on Twitter @JaneCColby or read her tweets at www.tymestrust.org ====== ME - THE NEW PLAGUE 2 : Reclaiming the Patient's Voice A new book by Jane Colby ====== My new website www.methenewplague.net went live just a couple of weeks ago, to launch my new book. My Twitter followers have been trying it out. As it says on the home page: "Charles Dickens wrote and published his books in episodes. Author Jane Colby is following in the master's footsteps by releasing ME - The New Plague 2 in episodes, free of charge." The first episode, set in a TV studio, recounts the PR disaster caused by the BBC when ME patients were encouraged to bay at a well-known doctor. I've taken part in many TV programmes over the years, and it's never clear quite what will happen as a result, or whether it will help or hinder. But as I explain: "the truth of this devastating disease lies with the ME patients themselves" so it is they - we - who must be listened to. However, in this case... well, find out for yourselves. It's a short episode and quickly digested. I hope it'll whet your appetite for more. In the original 'ME The New Plague', I investigated the forgotten links between ME and polio, and interviewed eminent specialists. When it went out of print, I promised a new version, including key information from the first one. But on top of that, the project's turned into something more - it's a literary call to respect the patients and the clear evidence they have to give. ALSO The Great Sock Rebellion : and other revolts Yes, it's my new Stripeysocks blog! Find it at http://www.methenewplague.net/blog.html I hope it'll raise a smile. And encourage you onwards and upwards in living with ME. We don't all have to be clones. CONTACT If you want to be updated when Episode 2 of the book is available, there's a contact form on the website. That will ensure your reply will go into the right place and won't be overlooked. Don't just reply to this Alert and trust me to remember to put you into the list. I'll try of course. But be on the safe side and use the form. These Alerts are normally about Tymes Trust initiatives, and will continue to be. The list of contacts who want updates about the new book is separate. All good wishes Jane Jane Colby FRSA Executive Director The Young ME Sufferers Trust PO Box 4347, Stock, Essex, CM4 9TE www.tymestrust.org Tel: 0845 003 9002 Holder of The Queen's Award for Voluntary Service: The MBE for Volunteer Groups ====== READ ALL PREVIOUS ALERTS AND SUBSCRIBE TO MY LIST AT www.tymestrust.org To unsubscribe, send an email via the website Contact Us form. ====== You are welcome to redistribute or reprint this email without seeking our permission provided: 1) you do not abbreviate, add to, or change the text in any way; 2) the authorship information is retained; and 3) www.tymestrust.org is credited as the source. Jane Colby is Executive Director of The Young ME Sufferers Trust. She was a Headteacher for nine years, a member of the government Chief Medical Officer's Working Group on CFS/ME and co-authored ME/CFS In UK Schools, the largest epidemiological study of ME to date. She is a life member of the National Association of Head Teachers and a Fellow of the Royal Society of Arts. Copyright (c) 2013 The Young ME Sufferers Trust