The Young ME Sufferers Trust www.tymestrust.org December 2003 ====== In Tymes Magazine : on concerns over PCT use of Government ME services funds and what we recommend ====== The Government has allocated £8.5 million for services to people with ME nationwide. This will go mainly to Primary Care Trusts, who must obtain backing for their bids from their local ME Support Groups. It has come to our notice that many such proposals involve setting up clinics that will deliver services such as diagnostic facilities, alternative therapies and cognitive behaviour therapy, to those able to attend. We are concerned at the potential emphasis on CBT and/or graded exercise therapy, known in some cases to exacerbate this illness or be ineffective. The Young ME Sufferers Trust wishes to put on record that we would like to see finance available for specialist home facilities. This would encompass domiciliary visits from specialist nurses who would deliver care in the home in order to support and relieve the carer, on a periodic basis to be agreed according to need and resources. Diagnostic facilities should also be available in the home where necessary and respite care should be available to those in need. ====== Copyright (c) 2003 The Young ME Sufferers Trust