Registered Charity 1080985

Tymes Trust is the longest established national UK service for children and young people with ME and their families. It is a respected national charity whose entire professional team give their time free of charge. They work constantly with doctors, teachers and other specialists, and played a major role in producing the children’s section of the Dept of Health Report on CFS/ME (2002).
Lord Clement-Jones CBE
Founder Patron

You are welcome to redistribute or reprint documents from this website without seeking our permission provided: 1) you do not abbreviate, add to, or change the text in any way; 2) the authorship information is retained; and 3) www.tymestrust.org is credited as the source.

XMRV VIRUS

You may have read about the possible link between ME/CFS and a novel retrovirus - XMRV. Because of the way they are transmitted, retroviruses would not appear to account for school epidemics of ME. We concur with ME experts like microbiologist Dr Elizabeth Dowsett, who maintain that classic ME is, and always was, an enteroviral disease related to poliomyelitis, which the recent work of Dr John Chia in California would support. Whether XMRV is a second player, future research will hopefully clarify. Doctors may wish to know that enteroviruses can now be recovered from the stomach, using a specific protocol supplied to us by Dr Chia. Contact the Trust for more information.

Read Vision 2009-3 page 19 for a fuller statement on XMRV.

Following this link when you are buying things from Amazon
won't cost you any more but will help our funds. Thanks.

Young Hearts is a collection of inspirational poetry by over 40 children and young people with ME aged 7 to 26. Foreword by Terry Waite CBE. All profits will be used for the Trust's services. This book was originally the dream of Tymes member Jade Louise Scarrott who was so tragically taken from us in a road accident at the age of 14. She wanted to raise awareness and understanding of ME in children. A review was recently published by Special Children magazine.

To commemorate Jade Louise Scarrott we present the ITV Central News feature on childhood ME (broadband version - 11.4MB) (dialup version - 1.05MB) which was prompted by the publication of Young Hearts. Includes interviews with Jade's mother Karen and Jane Colby. If you have problems viewing Windows Media files, download this version - 2.75MB.

I very much hope you will join me in becoming a Friend of the Trust.

Let us together support this excellent charity that is providing so much practical help to children with ME. And in doing so, let us also support one another.

Lady Elizabeth Anson, Cousin to the Queen

We would like to thank poet, songwriter and BBC presenter Stewart Henderson, who wrote a poem about ME especially for the Remember The Children concert at Brentwood Cathedral. His moving performance was much appreciated. Stewart has kindly given us permission to present his poem here.