Tymes Magazine

Vision
for young people, families and professionals

Shirley Conran

I am proud to be associated with The Young ME Sufferers Trust as a Patron. The Trust's magazines have helped me considerably; I really do read every issue from cover to cover. I think that the interviews are extremely good, and quite different from one another.

Shirley Conran OBE, best-selling author

Vision is available by post for £3.95 (including post and packing). It can also be downloaded here. If you find these publications helpful please consider making a donation to support our work; your money will only be used to fund the provision of services as our entire team give their time free of charge.

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Vision 2008-1
The Brief 2008-1

Vision (2008-1)

  • Vision : Project Update
  • At Home With The Trust "Attend" our virtual Open Day
  • Trust Alerts to Your Inbox Sign up now
  • Your Question What can we expect from standard CBT/GET?
  • Our Needs Our Lives Advising your clinic
  • Virtual Education Update Advising the government
  • Alan the Alien Talking sense as usual
  • The Good People More magic to colour from Susie
  • Fun Raising! Our thanks to you all

The Brief (2008-1)

  • Activity Programmes Helpful or harmful?
  • Dutch Study Finds Cognitive Behaviour Therapy Overrated
  • Focus on Diet in ME - is it such a big deal?
  • The Lightning Process Miracle cure?
Mini-Vision 2007-3
The Human Factor

Mini-Vision (2007-3)

  • Princess Helena Becomes Patron
  • Hope of a Test and a Cure
  • Big Apple Bears and Seasonal Competitions

The Human Factor - A Preview of The Colby Report 2008

  • ME - The New Plague Updated passages
  • John Chia MD Interview Why did no-one believe ME was a persistent viral infection?
  • Register Get information and/or be consulted for the Report
Vision 2007-2
The Brief 2007-2

Vision (2007-2)

  • Vision : Project Update
  • House of Lords Trust and Friends celebrate virtual education success
  • NICE Report The Good, the Bad and the Ugly
  • The Meeting Tell us the tale of Susie's latest artwork
  • New Research Enterovirus link confirmed
  • Brentwood Cathedral Stewart Henderson's special poem for ME Awareness Day
  • Seb Meets Lady E Eight small steps for a spider...
  • Your Question Is ME now classified as CFS?
  • Padraig Harrington Open champion wishes you the luck of the Irish!

The Brief (2007-2)

  • CFS/ME Confusion Activity programmes could be harmful
  • Independence of Charities Threatened
  • Focus on ME/CFS in UK Schools
  • Pervasive Refusal Syndrome - What Is It?
Vision 2007-1
The Brief 2007-1

Vision (2007-1)

  • Vision : Project Update
  • In The Spotlight "Schools swept by ME plague"
  • Irish ME Group Partner Group reviews College of Psychiatrists' CFS publication
  • Susie's Springtime More amazing artwork for you to colour
  • Why CFS is not ME The Trust's submission to NICE
  • Byron Hyde MD Author of the new Nighingale ME Definition
  • Letters of Commendation Would you like us to recognise your best teacher?
  • Super Spider at Large Again More heroic holidaying
  • ME Awareness Day Music and poetry at Brentwood Cathedral

The Brief (2007-1)

  • SEN or Not? Two parallel systems for modified education
  • Quotes : The Nighingale ME Definition
  • Focus on Ten Points on the Education of Children with ME
  • Protecting Children
Mini-Vision 2006-3
Mummies Aren't Supposed To Cry

Mini-Vision (2006-3)

  • New - The Nightingale ME Definition
  • Working Together : MEA and TT
  • NICE Is Anything But Nice
  • Snowy Bears and Seasonal Competitions

Mummies Aren't Supposed To Cry

"Thinking back to those times, I wonder how we got through it, but we did." Articles by family members.

Vision 2006-2
The Brief 2006-2

Vision (2006-2)

  • Vision : Project Update
  • Young Hearts Advocacy Project In schools, surgeries, libraries
  • Tymes Trust/Nisai NVA Up to 2000 free places for over16s
  • The Gibson Inquiry Dr Ian Gibson MP gives his views
  • GP Line - Our Experience Get a special rate through the Trust
  • In The Spotlight Consultant's letter not needed for home education
  • Mythtery of Lyme Disease Explained Lyme scare reassurance
  • Healthy Results Watch our virtual seminar for schools and teachers
  • 20Q Returns Melvin the Brain seeks new home to visit
  • Out and About with Kinnerton He does nick exceedingly good cakes...
  • Sally's Open Day Get a personal invitation for the next one!

The Brief (2006-2)

  • ME and the Enteroviral Link Jane Colby's paper in Journal of Clinical Pathology
  • Facts At Your Fingertips Close Household Contact Risk Factor for CFS; GP Services
  • Focus on School Examinations and ME - Special Assessment Arrangements
  • Opathyitis
Vision 2006-1
The Brief 2006-1

Vision (2006-1)

  • Vision : The Westminster Conference
  • The Gibson Research Inquiry The Trust's oral evidence
  • Insomnia - Don't Lose Sleep Over It Dr Darrel Ho-Yen
  • Special Educational Needs Read our parliamentary evidence in full
  • Teacher Training We run the first online teacher's seminar
  • In The Spotlight Tymes Trustcard evaluation (so what's in your wallet?)
  • Bear Necessities Name the bears!
  • Seb On Holiday Again Super girl lends supercar to superspider
  • All Creatures Great and Small Crossword

The Brief (2006-1)

  • Psychiatrists Still in Denial on Home-Based Education
  • Facts At Your Fingertips Children's medicines not tested; respite care
  • Focus on The Quick Tour
  • The Aha! Factor and the Three Holy Grails
Vision 2005-3
The Brief 2005-3

Vision (2005-3)

  • Vision : Trust Website Chosen for National Archive Trial
  • Lady Elizabeth Anson Queen's cousin hosts Friends' reception
  • Should I Call The Doctor? Your 24-hour GP line
  • Stamina and Examinations Photocopy and give to your school exams officer
  • Volunteers Wanted for Research Funded by the Trust
  • In The Spotlight ME/CFS guidelines for educational psychologists
  • Julia Malin's Colouring Competition Professional illustrator draws for you
  • Seb's Holiday Spider crashes wedding party in Turkey
  • Young Hearts Day 2005 Remembering children with ME

The Brief (2005-3)

  • Evidence to the Parliamentary Select Committee on Special Educational Needs
  • Facts At Your Fingertips National formulary for children; Yellow cards; Disabled students
  • Focus on Care of CFS/ME in Children
  • ME - A Persistent Viral Infection?
Vision 3
The Brief 3

Vision (Autumn 2005)

  • Vision : Campaigning and Lobbying
  • Terry Waite MBE Our new patron
  • What You Think Free over-16 virtual education
  • Recent Research Into Exercise and ME What it means to you
  • Dr Darrel Ho Yen I've lost my sparkle - using energy wisely
  • In The Spotlight Our Needs Our Lives - new report from the Trust
  • The Countess of Mar Campaigning in the House of Lords
  • The Young ME Sufferers Trust Open Day At Westlands Garden and Nursery
  • What Have You Been Doing? Fudge goes to Paris

The Brief (Autumn 2005)

  • New ME/CFS Guidelines for Educational Psychologists
  • Facts At Your Fingertips A persistent viral infection; Antidepressants; Virtual educaton
  • Focus on Young Hearts television interview with Jane Colby
  • 50,000 Youngsters Learning At Home
Vision 2
The Brief 2

Vision (Mar / Apr 2005)

  • Vision : A Progress Report
  • The Countess of Mar and Barbara Windsor MBE Our new patrons
  • Pushing the Boundaries in ME/CFS Jane Colby kills the psychological myth
  • South Australian Government Guidelines for GPs We comment
  • Dr Vance Spence More on our biomedical research project; the first ever in children
  • In The Spotlight What is the ME Alliance, what is it doing and why do we belong?
  • Seb's Treasure Giveaway "Psst. Over 'ere."
  • Things 4 u 2 do Spot the difference and win a prize!
  • Young Hearts The launch, a review, letters, and more poetry

The Brief (Mar / Apr 2005)

  • The RCPCH Guideline Where they listened; where they didn't
  • Facts At Your Fingertips Problems with the 'evidence-based' process and the time-line
  • Focus on Experiences : Whispered Words
  • Doctor Still Knows Best?
Vision 1
The Brief 1

Vision (Nov / Dec 2004)

  • Vision : The Project
  • Terry Waite on Young Hearts Plus your first comments
  • Earl Howe and Shirley Conran OBE Our new patrons
  • News Release We fund the first Biomedical Study of ME in children
  • Dr Vance Spence The Chair of MERGE talks to Jane Colby
  • Do Families Want Care in the Home? We report
  • In The Spotlight The Trust's position on ME clinics
  • Virtual Education Partnership We list the LEAs involved
  • Mr Harley's Brilliant Bears Would you like one?
  • The Principal Research Officer at RCPCH on the forthcoming Paediatricians' Guidelines
  • Things 4 u 2 do Competitions u can still have fun with
  • Motorsport's Chris Dyson sends his encouragement

The Brief (Nov / Dec 2004)

  • Twenty Years On Jane Colby introduces The Brief and summarises 20 years' work
  • Facts At Your Fingertips Education law; NAHT Policy; Standards for Children in Hospital
  • Focus on The Doctor's Guide to ME in Children and Young People
  • Are Injections Safe for Children with ME/CFS?

Tymes

Issues listed here are available by post for £2.95 (including post and packing). Issues after Spring 2003 can also be downloaded here.

You will need Adobe Acrobat Reader to view these files. It is free, and you can get it here.
Tymes 48

Tymes Issue 48 (Summer 2004) : Succeeding With ME

  • House of Lords Launch of the Tymes Trust / Nisai Education Partnership by Earl Howe
  • Do Families Want Psychiatrists? We investigate
  • Exploring : Anti-Viral Drugs Dr Elizabeth Dowsett
  • Great Ormond Street Study Our opinion
  • In The Spotlight : The Tymes Trust View Check your child's records
  • Simon Selkin's Big Box of Gifts Would you like one?
  • Education Minister Baroness Ashton Thanks Tymes Trust
  • Seeing's Believing Dr Darrel Ho-Yen
  • Young Hearts Poetry appeal
  • A High Speed Hello from three top Le Mans drivers
Tymes 47

Tymes Issue 47 (Spring 2004) : Making It Happen

  • Nisai Press Release Announcing our education partnership
  • The Dave Monk Show Revolutionary ME-friendly education system (BBC interview)
  • Exploring : The Physical Evidence A Newshounds Special
  • In the Spotlight : The Tymes Trust View Should we use the new Canadian diagnositc criteria?
  • The Chair of Trustees' Bear Awards Send for a Beefeater Bear!
  • The Sky's the Limit How Tymes Trust trains teachers
  • Great Treasures Dr Darrel Ho-Yen
  • Shirley Conran's Letter Writing Prizes
  • Caron Keating : A Very Special Hello
Tymes 46

Tymes Issue 46 (Winter 2003) : Seeing Stars

  • Stars with ME Best-selling author Shirley Conran and Speedway ace Gary Frankum
  • An Acknowledgment of the Trust's Work The Rt Hon Charles Kennedy MP
  • Exploring : ME and the Family Jill Curtis on managing family festivities
  • Doctors with ME Dr Anne Macintyre and Dr Charles Shepherd
  • In the Spotlight : The Tymes Trust View How should the new government money be spent?
  • Christmastide Poetry
  • Positive Response Elizabeth gets 40 GCSE marks for educating her school about ME
  • What Makes You Smile?
  • Barbara Windsor : A Christmas Message

TYMESplus : Story of My Christmas by Dr Anne Macintyre

Tymes 45

Tymes Issue 45 (Autumn 2003) : What's the Key?

  • Feature Interview : Dr Lynn Michell Former researcher with Medical Research Council echoes findings of The Forgotten Children
  • Exploring : The Polio Link Are ME and Poliomyelitis related?
  • The GPs Good Practice Guide to Education for Children with ME Lord Clement-Jones CBE launches our new publication
  • Back to School? How the government's guidance for sick children is being interpreted
  • Insight : Friendship Quality is better than quantity
  • What's the Key? Our Focus Group families guide us on what they find helpful
  • In the Spotlight : Decreased Ability to Exercise
  • Derek Acorah : A Friendship Message
Tymes 44

Tymes Issue 44 (Summer 2003) : Tyme for Life

  • Feature Interview : Terry Waite In conversation with Jane Colby on endurance and hope
  • We present our dossier The Forgotten Children to Number 10 Statistics on how families are treated by doctors and schools
  • Exploring : The War on Fear Summary of the 'dossier of shame'
  • Insight : Nature's Power The influence of nature on health
  • Thornton Awards Teacher trained by Tymes Trust wins award
  • Doctors of Philosophy Dr Darrel Ho-Yen and Professor Tony Pinching
  • In the Spotlight : ME in Japan
  • Kenneth Branagh : 'Strength and Courage'
Tymes 43

Issue 43 (Spring 2003) : According to ME

  • Feature Interview : Kerry Ann Edge Showing how and why a young person's health can recover over time
  • Listening to the Children with Toria Bicknell
  • Exploring : The Glass Ceiling Dr Charles Shepherd explores exercise limits
  • Report on the Launch of our Parents' Forum with raisingkids.co.uk
  • Taking the Fear out of Tube Feeding with our tube feeding advisers
  • According to ME : Self-healing by Dr Aloke Agrawal
  • The Educational Dimension by Dr Nigel Hunt
  • James Herbert supports the Tymes Trust
Tymes 42

Issue 42 (Winter 2002) : Ready Steady Pace

  • Feature Interview : medical journalist Jerome Burne Explaining the media's treatment of ME
  • Syndrome or Symptom? Notable doctors and others' views on the name 'CFS'
  • How we studied the Effects of Pacing Showing that Pacing is effective and safe
  • Pacing the Holidays A practical guide on surviving the festive season
  • Cheerful Notes Young people's favourite music and pages to colour
  • Prime Minister's Endorsement of Tymes Trust
Tymes 41

Issue 41 (Autumn 2002) : Heart to Heart

  • Feature Interview : Shirley Conran Her first interview on her ME: "Why I wrote Superwoman"
  • Facing Emotions with Tymes Trust Medical Adviser Dr Darrel Ho-Yen
  • How To Get Good Grades and Protect your Health Special Arrangements
  • A*s in Their Eyes! Practical tips on the exams experience
  • Heart to Heart Young people's feelings and thoughts on having ME
  • A Personal Road to Success One family's experience of computer learning
Tymes 40

Issue 40 (Summer 2002) : Hand in Hand

  • Feature Interview : Lady Elizabeth Anson The Queen's cousin talks of her ME
  • House of Lords presentation of Tymes Trust computers to children with ME
  • How to Accept and Adapt from Zoe's Win by Jane Colby
  • Out and About for Summer Young people share ideas for easy visits or activities
  • Tymes Trust Partner Groups Including news of international links
Tymes 39

Issue 39 (Spring 2002) : Tyme to Report

  • Launch of the government Chief Medical Officer's Working Group Report on CFS/ME
  • How the Chief Medical Officer's Report on CFS/ME affects Education
  • Physios Urged To Go Cautiously Guidance for physiotherapists from Physiotherapy Frontline
  • Rehabilitation or Recuperation? Caution and Common Sense
  • Catch of the Day Evaluation of CBT study in children
  • Where I Live Young people tell us about their circumstances
  • Launch of the Tymes Trustcard Endorsed by the Secondary Heads Association
TYMESplus : Physios Urged To Go Cautiously by Jane Colby

 

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